Today is a "rest" day again after a whirlwind of activity. In the last few days we have gotten Meg's port for chemo in, finished the IVF treatments, got home health ready to go for following her during chemo, and pretty sure it is set for where Matt will be stationed.
So things are progressing and appear to be going as well as can be expected in this type of situation. We have also learned some things such as ..really stress that anasthesia (sorry I can't find spell check on here)makes her very nauseated and to request something for it before she gets sick. We found this out during the port placement b/c even though it was mentioned to the medical staff I don't believe that they understood it completely until after she was sick and then it delayed her discharge waiting for the medicine to kick in.
So at the clinic for the IVF harvest we did stress it and the wonderful staff put a nausea patch on b/f giving her the anasthesia. Plus the wonderful nurse gave her some extra ones to take home. From what I hear they may come in very handy once the chemo tx start. The actually harvest was a bit lower than hoped for ..only 7 eggs were considered ok to use but Meg is keeping a very positive attitude concerning it.
Matt has been following up on getting his orders to find out where he will be stationed and has had to make a couple of trips up to Fort Myers to get everything in place for that issue. He has had a guy (dave carr) whose family is from Ridgway area helping to get it all worked out (her dad helped to put that connection together) anyways between Dave Carr and the people here working together and being very helpful it now looks like there is a good chance he may actually get attached to the fort closer to Annapolis and may just have to email/call each day for a duty report. There was a time when we thought he might be attached to the one closer to DC and if they stayed here he would have a very long and tedious commute so their long term living arrangements were at a more questionable point. But now it looks like that is working out and hopefully they can stay here and he will be available to help take care of her and won't possibly need outside help once I go home. Yes I do eventually plan to go home, although I think my husband is begining to wonder about that! LOL. Vacation is nice but she doesn't require alot of time-consuming care (I am mainly providing moral support with a little extra hands on care at times) so I am really getting bored and lazy. In fact as a side note we were supposed to have a fun day today to celebrate the last 2 accomplishments and prepare for the next step but I have had an offer from Lisa to come help paint today and so I am off to work instead of fun and looking forward to it!
But it is hard at times..I tell her that considering she has been dealt a very bad hand in this game of life at this point it looks like she has been given the best bad hand someone could hope for..considering all the support she has and how well things have fallen into place for the things she needs to do to continue on with the dreams she had just a few shorts months ago..it is still very very difficult at times.
Last night was one of those moments..when I see her dealing with the ileostomy and the changes it has brought into her life then holding her arm stiff and close to her side b/c even though the port placement was a fairly simple procedure ..it still hurts to have a forigen object placed in your chest...and holding her hot packs on her tummy (b/c you know ..our overies really don't like getting stuck with a big long needle!) and then to see her try and walk around with a smile as she pounds down the liquids and food to stay hydrated and continue to try and gain weight to get ready for the next step.
It is hard and I will vent for just a moment of how much it hurts to see your child go from a perfectly healthy lifestyle to this enormus battle to keep her dreams that she was making just a short 4 months ago. There are times and parts of me that want to do everything I can physically for her and just sit down and cry with her over the unfairness of it all. But.. I know that won't help in the long run and then she gets a little pi_ _y (just a little..ya know she isn't a saint!) so I come back to reality and know that that kind of negativity won't help any of us esp her so I blank it out and try to come up with something that will bring one of her lovely smiles back. So it is going as well as be expected and we have many things to be grateful for and feel that although we don't know WHY? God is there and guiding us throught it all. Read the 23rd Psalm if you never have.
So today we..ok they..are sleeping in, going to enjoy having some fun in this cool place with lots of stuff to do and not think about Monday today. Keep it in your prayers though and help us at times to keep in mind that it is the begining of the end of all this crappy stuff in life..hopefully by next august it will only be a memory that will motivate us all to help someone else who is struggling with the unexpected in life. Going to try and get a really good pic of her and Matt on here today b/c in spite of the last few days she looks pretty good and it will be a good focus to hang on to and maintain.
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